News from Stop | Winter 2020

You’re Invited: Join Our Study on the Long-Term Health Consequences of Foodborne Illness

Kidney failure, brain damage, nerve conditions, autoimmune disorders, chronic arthritis, and emotional trauma.

These painful and potentially fatal health issues, among others, can be an unfortunate, life-altering reality for many people who’ve suffered from a foodborne illness.

Now, we have some questions for you:

  • Have you endured a foodborne illness that happened more than a year ago?
  • Are you living with negative physical and/or emotional health conditions that have had or are having a significant impact on your quality of life?
  • Would you like to help others by sharing your experiences?

If you answered YES to these questions, we are looking for you, and we hope you’ll join in a new project we’re undertaking. It’s called the Culture Confirmed Library of Evidence and Registry (C-CLEAR) and will include information from people who’ve endured long-term health consequences due to contracting a foodborne disease.

 

WHY THIS STUDY IS NEEDED + WHAT YOU CAN HELP ACCOMPLISH

When it comes to useable information on the long-term health effects of foodborne illness, there isn’t much available. For victims, their families, and the medical professionals who treat them, this is a major disadvantage. There’s no “go to” source for people to gain helpful knowledge about what can be expected and how best to treat—and prevent or mitigate when possible—the severe health conditions that can arise.

Stop Foodborne Illness wants to change that. And, with participation from our friends, we can.

As a community coming together, we will accomplish some important outcomes including:

  • Determining the long-term consequences of foodborne illness, especially E. coli or microbes that mimic E. coli symptomology
  • Creating a registry of culture-confirmed foodborne illnesses
  • Providing resources and outreach to those who have been impacted by foodborne pathogens

 

HOW YOU CAN PARTICIPATE

Although we’re currently in the design phase of this new registry, our Dave Theno Fellow, Jaime Ragos, under the supervision of Dr. Patty Weber at Michigan State University, will be starting outreach in early 2020 with an electronic survey that will be sent to those interested in participating. The survey will last approximately 15-20 minutes and participants must be at least 18 years old to participate in this research. To be eligible, participants must have a confirmed or suspected case of E. coli or experienced Hemolytic Uremic Syndrome (HUS), Thrombotic Thrombocytopenic Purpura (TTP), or bloody diarrhea.

Right now, you can take the first step by contacting Jaime Ragos at jragos@stopfoodborneillness.org or 773-269-6555, extension 5. After Jaime receives your email, you’ll receive feedback from her on next steps.

 

RISKS AND POTENTIAL BENEFITS

This study poses little to no risk for physical, economic, or legal interventions, or social stigmatization, other than those encountered in everyday life. There is minimal risk for psychological stress as being a victim of foodborne illness or seeing a loved one suffering from foodborne illness is a traumatic experience and may cause negative feelings or painful memories.

The risk will be minimized by each question of the survey being optional; if you feel anxiety or discomfort while answering a question, you are free to skip it. If you feel overwhelmed during the process, you can stop answering questions on the survey.

Participation in this survey does not provide specific benefits to the participants. After analyzing the data, long-term consequences of E. coli infections will be determined. Data will then be used to campaign for early detection of foodborne illness so that the long-term complications of foodborne illness are reduced.

 

CONTACT INFO

If you have concerns or questions about this study, such as scientific issues, how to do any part of it, or to report an injury, please contact Jaime Ragos at 865-255-7342 or ragosjai@msu.edu or her advisor, Dr. Patty Weber, at weberp@msu.edu or 517-884-2081.

If you have questions or concerns about your role and rights as a research participant, would like to obtain information or offer input, or would like to register a complaint about this study, you may contact, anonymously if you wish, the Michigan State University’s Human Research Protection Program at 517-355-2180, Fax: 517-432-4503, or email irb@msu.edu.

If you believe you’re ready to take the survey now, please click here.

 

THANK YOU so much for your consideration in participating in this study.

RESOURCES

Michigan State University Extension: The serious and long-term effects of foodborne illness

Stop Foodborne Illness: Long-Term Consequences

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